Unique is a small charity supporting, informing and networking with families living with a Rare Chromosome Disorder or some Autosomal Dominant Single Gene disorders associated with learning disability and developmental delay, among other symptoms.
They provided us with some very helpful info and also have a private support group on Facebook. If this sounds like you, join them!
NORD (National Organization for Rare Disorders)
NORD is a patient advocacy organization dedicated to individuals with rare disease and the organizations who serve. NORD along with it's more than 300 patient organizations is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and patient services.
Facebook is FULL of private groups dedicated to all sorts of thing! Search for your disorder, you'll find something! Request to join and you'll find a support community that is right for you. You can also look up "special needs" and there are tons of options for that as well. If you would like further suggestions, please message us at firstname.lastname@example.org for assistance!
Resources for autism, seniors, children, adults, military and veterans, employment and training, medical rehabilitation, camping and recreation, brain health.
Children and adults with disabilities and special needs find highest-quality services designed to meet their individual needs when they come to Easter Seals. Teams of therapists, teachers and other health professionals help each person overcome obstacles to independence and reach his or her personal goals. Easter Seals also includes families as active members of any therapy program, and offers the support families need.